Making a difference
Policy work, submissions and alliances
SCIA Advocacy Engagements
SCIA’s Policy and Advocacy Team are working hard to create a more inclusive society on a systemic level. Our engagements with like-minded alliances and policy work help make this happen.
If you need assistance contact us through our Policy and Advocacy request form.
Ongoing Policy Work
In late 2020, SCIA’s Policy and Advocacy Team reached out to our members to identify the most important issues affecting people with spinal and neurological conditions, their families and carers. We conducted an online survey with 134 respondents and follow up interviews with 22 people.
As a result, our Policy and Advocacy team had identified priority areas for upcoming systemic advocacy work:
• Support for people with disability aged over 65
• Increasing availability and allocation for long-term accessible housing, including social housing
• Ensuring universal, timely access to assistive technology and equipment
SCIA’s Policy and Advocacy team were approached to develop a disability snapshot on spinal cord injury be used internally for staff training and planners and LACs.
They were asked to develop the NDIS fact sheet based on the template with specific relevant information on SCI. These fact sheets are now published and being used across the NDIA internally and by partners in the community (LACs) to help their understanding of different disability types.
As a follow-up to this work, videos talking about their own circumstances are being developed as a companion to the disability snapshots.
Where it matters
As part of the committee’s role to inquire into the implementation, performance and governance of the NDIS, the committee is conducting an inquiry into independent assessments under the NDIS. The terms of reference are broad and SCIA’s submission covers all of our concerns about what is being proposed. View the submissions here.
Closing date for submissions is March 31, 2021.
SCIA took part in NDIA consultations on the independent assessment proposed processes; partnered with the Physical Disability Council of NSW and Muscular Dystrophy NSW in holding an online forum with members to get feedback; and wrote a 28-page submission detailing our concerns.
Submissions are now closed. View our submission here.
The Department of Social Services (DSS) opened consultation to measure, monitor and report on the effectiveness of a new NDS and the NDIS to ensure the outcomes frameworks are meaningful for people with disability.
Consultation closed on December 18, 2020. View our submission here.
The National Disability Strategy 2010-2020 is Australia’s overarching framework for disability reform and sets out a ten-year national plan for improving the lives for Australians with disability.
The DSS was asking for feedback on government’s proposals for the next Strategy, as set out in the National Disability Strategy position paper.
Submissions closed on October 31, 2020. View our submission here.
New South Wales’ Ageing and Disability Commission (ADC) proposed the establishment of a Standing Review to monitor, assess and report on the implementation of the National Disability Strategy in NSW. The ADC asked for feedback on what approach a Standing Review should take to best promote the interests of people with disability and their family and carers in NSW.
Submissions closed on 30 October, 2020. View our submission here.
Formal Alliances and Reference Group Memberships
Alliance of state and national organisations seeking equal access to assistive technology for those excluded from the NDIS.
SCIA have joined other disability representative organisations and advocacy groups to seek mandatory accessibility standards within the National Building Code would ensure hundreds of thousands of Australians would have access to appropriate housing.
SCIA have an associate membership with the SDA Alliance. This ensures we advamce our advocacy work and committment to support Specialised Disability Accommodation (SDA) for our members and the people we represent.
NATIONAL REFERENCE GROUP MEMBERSHIPS
We meet twice a year to seek to improve air travel services for people with disability
We work towards improving SDA policy, better meeting the needs of people with disability who use or need this accommodation
NEW SOUTH WALES REFERENCE GROUP MEMBERSHIPS
We’re part of a large coalition of New South Wales disability advocacy organisations seeking ongoing commitment from the New South Wales Government to fund advocacy.
The 2020 budget announced $13 million per annum over three years to support advocacy.
Facilitated by Transport for NSW (TfNSW), this reference group advises transport policy and changes.
We help support the development of strategies to minimise risk for the SCI community
SCIA helps provide advice to the Agency of Clinical Innovation (ACI) executive and New South Wales Ministry of Health. We identify priority areas and coordinate efforts to improve the quality and safety of healthcare for people over 16 years with an SCI living in New South Wales.
The State Spinal Cord Injury Service works to ensure that people with SCI receive the highest quality services which support recovery following injury, monitor, manage and stabilise long term health impact and facilitate personal independence for people returning to community life.