Podcast

A Podcast About Disability

Have The Nerve

Podcast about real issues and honest talk

Have the Nerve is our podcast brought to you by Spinal Cord Injuries Australia and funded by the Australian Government Department of Social Services.

We want to inform, educate and empower people with disability, their families, carers, friends as well as people who work in the disability sector.

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    This podcast is as much yours as it is ours. We want to make sure you feel support, informed and ready. If there is something you would like us to cover or something you think more people should know about let us know by emailing us at community@scia.org.au.

    Have The Nerve is funded by the Australian Government Department of Social Services. Visit www.dss.org.au for more information.

    Episode Guide

    COMING UP:
    Neuroplasticity

    How the experience of grief, trauma and loss goes beyond how you acquired your disability

    Disability representation in Parliament with Greens Senator Jordon Steele-John

    How Governments keep failing People with Disabilities and what can they do to fix it

    STREAMING NOW:
    Episode 15 – June 3, 2022
    Employment, Disability and Changing a Culture of Discrimination

    Finding work and having a disability is hard. No like, it’s really hard.

    In this episode, Susan talks to Phat Ngo, Employment Service Manager for SCIA’s EmployAbility Service and Dominika Jachym, EmployAbility’s Employment Coach about the obvious misconceptions of disability and employment, how that feeds into the hesitation a lot of employers have when hiring someone with a disability, how employers can better themselves to be a more inclusive workplace, help people with disabilities climb the career ladder and how COVID has forced people to start looking at what employment means in a different light.

    Episode 14 – May 5, 2022
    Why is standing so important for people who can’t move their legs?

    Maybe some of you may not have thought this was possible. Maybe some of you didn’t know that this could and should be something to consider.

    We’re not talking about miraculously standing up and walking around, NeuroMoves Physiotherapist Colbey Van Leeuwen and Exercise Physiologist Alicia Payne talk about the importance of standing in therapy, particularly for people who have had traumatic spinal cord injuries, the technology and what the research says.

    Episode 13 – March 31, 2022
    Sexual Rights, Sex Work and Disability with Rachel Wotton

    Rachel Wotton is a Sex Worker living in Inner Sydney, Churchill Fellow and PhD candidate at Western Sydney University. Her PhD is about exploring the experiences of people with disabilities accessing sex workers in Australia.

    Susan and Rachel talk about the misconceptions of two marginalised communities, the legacy of her 2011 documentary Scarlet Road, how her work has helped many people with disabilities to find independence and confidence and how she helped get sex work on the NDIS.

    Episode 12 – February 3, 2022
    So, How Disabled Do You Need To Be For The NDIS?

    Eligibility within the National Disability Insurance Scheme (NDIS), is a bit of a grey area. From proving your disability is permanent enough to accessing the scheme to prioritising which aspect your disability is the most important one to fighting – for a lot of people their medical condition doesn’t qualify to be on the NDIS despite their condition having lifelong physical impacts.

    In this episode, Susan talks to SCIA’s Senior Support Coordinator Louise Hilton and Policy and Advocacy Officer Megan Bingham.

    Episode 11 – December 2, 2021
    Tourism, Access and City Planning with Access Bondi

    Now that Summer is upon us in the Southern Hemisphere, Mike Cerrone, Project Officer for Waverley Council’s Access Bondi! talks to Susan about why it’s important for tourist destinations to be accessible for all people of all abilities.

    Bondi Beach is a popular tourist destination on the east coast of Australia that brings in millions of visitors every year. We talk about how decent and suitable access can change society’s perceptions on inclusion, give people freedom of choice when they go out and how your input can help encourage local councils to make accessibility a priority.

    Episode Ten – October 14, 2021
    Psychosexuality, Sexual Self-Esteem and Disability

    Candice Care-Unger and Arlyn Owens from Royal Rehab’s Sexuality Service in Sydney talks to Susan about how sexual self-esteem and empowering sexual confidence in people with disability is more than the literal mechanics of sex.

    Whether you’ve had your disability long term, or recently, Candice and Arlyn talk about psychosexual intervention, the holistic approach to sexual wellbeing and how the media’s ableist portrayal of sex has skewed society’s expectation of dating someone with a disability.

    Episode Nine – September 23, 2021
    Nazim Erdem – Paralympic Gold Medalist, Wheelchair Rugby

    We’re celebrating the diversity of disability and highlighting spinal cord injury awareness for the entire month of September.

    In this bonus episode of Have The Nerve, former Australian Steeler and Paralympic Wheelchair Rugby Gold medalist, Naz Erdem joins us to talk about his life as a Paralympian across five Paralympic games, his post Paralympic career and his hopes for the future of disability and sports.

    Episode Eight – September 16, 2021
    Louise Sauvage – Paralympic Gold Medalist and Coach, Wheelchair Racing

    Have The Nerve is celebrating the diversity of disability and the importance of disability representation for the month of September.

    In this episode, Louise Sauvage (Former wheelchair racer, Australian Paralympic Wheelchair Racing Gold Medalist and now the coach for up-and-coming wheelchair para-athletes and Australian Paralympic gold medalist Madison de Rozario), talks about growing up in Perth, her career as a Paralympian and the importance of universal accessible design and disability representation.

    Episode Seven – August 12, 2021
    Talking about first experiences after a spinal cord injury

    When you think about first milestones in your life what do you think about?
    First day of school? First kiss? First boyfriend or girlfriend?

    ….What about the first time you realised your injury is permanent? Or the first time you fell out of your wheelchair?

    It’s not often we get to talk about what it’s like to experience, or sometimes re-experience, things for the first time following a spinal cord injury.

    Chloe and Jacob talk with Susan talk about the confronting realisation of acquiring a spinal cord injury and the path of first time experiences that have shaped the way they see their disability now.

    Episode Six – July 8, 2021
    Over 65’s, NDIS and Aged Care funding

    Navigating support funding for older Australians with a disability can be difficult. What happens if you are aged 65 and over and acquire a disability?

    For this episode we’re going to be discussing supports for older Australians with a disability from the NDIS to My Aged Care Funding.

    You’ll hear lived experiences from Susan who sustained a brain injury in 2005 and was able to get onto the NDIS before she turned 65 and Di, who is the wife and primary carer of her husband, Gary who sustained a spinal cord injury in 2019 at the age of 70. They discuss and compare their experiences alongside our systemic advocate, Megan, who breaks down how the funding works, what’s changing and how you can advocate.

    Episode Five – June 3, 2021
    Pain Management and Medicinal Cannabis

    What is like to live with pain that never stops? What is out there for pain management? Neuropathic Pain can be debilitating.

    CONTENT WARNING: This episode discusses suicidal ideation and addiction. Listener discretion is advised. If you are struggling with similar feelings we encourage you to please call the 24 hour crisis support service Lifeline on 13 11 14.

    For this episode we talk about how medicinal cannabis is changing the lives of people with a spinal cord injury and other neurological conditions with Cannadoc, as well as first hand experience of what the effects of pain can have on someone who sustained a spinal cord injury 33 years ago and struggled with increasing pain for over 16 years.

    Episode Four – May 6, 2021
    What you should know about SCI and bowel management

    Spinal cord injury (SCI) can significantly affect the bowels. When you have a spinal cord injury, bowel management can be debilitating. In this episode we explore everything you need to know when it comes to bowels and quality of life. For such a normal thing that everybody does, poo is such an unspoken topic. Not here! Edwina Spooner from Coloplast from digestive management to intimacy, we want people to start thinking about their bowels!

    This is a two-part series about continence.

    Episode Three – May 6, 2021
    What you should know about SCI and bladder management

    Let’s start a conversation about continence care. How much do you know about how a spinal cord injury (SCI) can affect the bladder?

    SCI can significantly affect the bladder. Edwina Spooner from Coloplast explains what a neurogenic bladder is, the importance of hygiene, good catheter technique and considerations you should make for situations like going out an intimacy.

    This is a two-part series about continence.

    Episode Two – April 1, 2021
    Life Lessons with SCIA’s Peer and Family Support Team

    Can having a disability change you?

    The SCIA Peer and Family Support team talk about their lived experiences and the reality of living with a spinal cord injury.Hear from Rob, Dan and Jess about what is truly important, lessons they’ve learnt along the way like patience, advocating for themselves, independence and dealing with mental health.

    Let’s put disability into perspective; changing mindsets, learning from other people, engaging in support and services available and not forget about how important mental health is.

    Spinal cord injury isn’t just doom and gloom, it’s about living your best life and focussing on what brings you joy.

    Episode One – March 4, 2021
    Got Pride! Identity, Discrimination and overcoming barriers for queer people with disabilities

    What are some of the challenges that people with disability within the queer community face when finding supports?

    Join host Susan Wood, SCIA Peer and Family Support Coordinator Jess Pellow, SCIA Policy and Advocacy Team Leader Michael Magro and ACON Community Health Promotion Officer, LGBTQ+ People With Disability Project Charbel Zada to talk about the QueerAbility NDIS Toolkit, dating and relationships, representation and what can we do as a society to better understand the issues and take action.