A Podcast About Disability
Have The Nerve
Podcast about real issues and honest talk
Have the Nerve is our exciting new podcast brought to you by Spinal Cord Injuries Australia and funded by the Australian Government Department of Social Services.
From Thursday March 4, 2021 we will be releasing episodes covering topics important to people living with spinal cord injuries and neurological conditions – including sexuality, advocacy, over 65s, NDIS and more!
We want to inform, educate and empower people with disability, their families, carers, friends as well as people who work in the disability sector.
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We will be releasing episode on YouTube. Subscribe to our channel to be updated!
This podcast is as much yours as it is ours. We want to make sure you feel support, informed and ready. If there is something you would like us to cover or something you think more people should know about let us know on our Online Forum or email us at firstname.lastname@example.org.
Can you help?
To better represent our community, we’re on the hunt for talent that align with the topics we would like to cover. Visit our Talent Wanted page to see who we’re searching for.
Have The Nerve is funded by the Australian Government Department of Social Services. Visit www.dss.org.au for more information.
Episode Six – July 8, 2021
Over 65’s, NDIS and Aged Care funding
Navigating support funding for older Australians with a disability can be difficult. What happens if you are aged 65 and over and acquire a disability?
For this episode we’re going to be discussing supports for older Australians with a disability from the NDIS to My Aged Care Funding.
You’ll hear lived experiences from Susan who sustained a brain injury in 2005 and was able to get onto the NDIS before she turned 65 and Di, who is the wife and primary carer of her husband, Gary who sustained a spinal cord injury in 2019 at the age of 70. They discuss and compare their experiences alongside our systemic advocate, Megan, who breaks down how the funding works, what’s changing and how you can advocate.
Episode Five – June 3, 2021
Pain Management and Medicinal Cannabis
What is like to live with pain that never stops? What is out there for pain management? Neuropathic Pain can be debilitating.
CONTENT WARNING: This episode discusses suicidal ideation and addiction. Listener discretion is advised. If you are struggling with similar feelings we encourage you to please call the 24 hour crisis support service Lifeline on 13 11 14.
For this episode we talk about how medicinal cannabis is changing the lives of people with a spinal cord injury and other neurological conditions with Cannadoc, as well as first hand experience of what the effects of pain can have on someone who sustained a spinal cord injury 33 years ago and struggled with increasing pain for over 16 years.
Episode Four – May 6, 2021
What you should know about SCI and bowel management
Spinal cord injury (SCI) can significantly affect the bowels. When you have a spinal cord injury, bowel management can be debilitating. In this episode we explore everything you need to know when it comes to bowels and quality of life. For such a normal thing that everybody does, poo is such an unspoken topic. Not here! Edwina Spooner from Coloplast from digestive management to intimacy, we want people to start thinking about their bowels!
This is a two-part series about continence.
Episode Three – May 6, 2021
What you should know about SCI and bladder management
Let’s start a conversation about continence care. How much do you know about how a spinal cord injury (SCI) can affect the bladder?
SCI can significantly affect the bladder. Edwina Spooner from Coloplast explains what a neurogenic bladder is, the importance of hygiene, good catheter technique and considerations you should make for situations like going out an intimacy.
This is a two-part series about continence.
Episode Two – April 1, 2021
Life Lessons with SCIA’s Peer and Family Support Team
Can having a disability change you?
The SCIA Peer and Family Support team talk about their lived experiences and the reality of living with a spinal cord injury.Hear from Rob, Dan and Jess about what is truly important, lessons they’ve learnt along the way like patience, advocating for themselves, independence and dealing with mental health.
Let’s put disability into perspective; changing mindsets, learning from other people, engaging in support and services available and not forget about how important mental health is.
Spinal cord injury isn’t just doom and gloom, it’s about living your best life and focussing on what brings you joy.
Episode One – March 4, 2021
Got Pride! Identity, Discrimination and overcoming barriers for queer people with disabilities
What are some of the challenges that people with disability within the queer community face when finding supports?
Join host Susan Wood, SCIA Peer and Family Support Coordinator Jess Pellow, SCIA Policy and Advocacy Team Leader Michael Magro and ACON Community Health Promotion Officer, LGBTQ+ People With Disability Project Charbel Zada to talk about the QueerAbility NDIS Toolkit, dating and relationships, representation and what can we do as a society to better understand the issues and take action.