We are here for you
Supporting people with SCI and other neurological conditions
Be a Hero this September
We are dedicating the month of September to supporting people with spinal cord injury and other neurological conditions.
You can Be a Hero for the entire month by setting yourself a physical challenge and clocking up as many minutes as you can.
You can choose any activity you like – wheeling, virtual tennis, walking, weight lifting – the choice is all yours! Log time through your virtual tennis session, or track your weekly walks. Remember, every minute counts.
Click HERE to register today!!
Help us support those with a spinal cord injury throughout their life
How would you like to donate
How much would you like to donatedonate now
Take our survey on accessibility and women's health services
We would like to hear from people with a physical disability, or carers, about your experiences accessing medical imaging and women's health services in NSW and barriers people with disability face using these health services.
This survey has been created and supported by Spinal Cord Injuries Australia, the Physical Disability Council of NSW, Muscular Dystrophy NSW, ParaQuad NSW and the Cerebral Palsy Alliance.
TAKE THE SURVEY HERE.
The survey should take about 10 minutes to complete.If you have any questions, please do not hesitate to contact Megan Bingham at email@example.com.
NSW, WA and SA refuse commitment to inclusive National Construction Code
The Building Better Homes Campaign, a coalition of peak disability bodies and agencies including SCIA, advocated for the inclusion of mandatory minimum accessibility standards within the National Construction Code (NCC).
Although a majority of state and territory leaders voted in favour of the change, unfortunately New South Wales, South Australia and Western Australia has committed to implementing the NCC.
In a response letter to SCIA, NSW Minister for Better Regulation and Innovation Kevin Anderson MP said:
"The proposal will require every single new home or apartment to be constructed to these higher, more expensive standards adding to the cost for all purchasers regardless of their accessibility needs...
In this regard, the NSW Government does not support the inclusion of minimum accessibility standards in the NCC as currently proposed. The changes will have negative impacts on housing affordability and the construction sector, and will also come at a significant cost to the community.
Furthermore, other more flexible and balanced approaches, including the nonregulatory options proposed in the analysis were not fully explored."
If you live in NSW, SA or WA we encourage you to get in touch with your state Building Minister, share your story and let them know you support accessible housing.
Here is a list of who to contact:
For more information about the Building Better Homes Campaign head to https://www.buildingbetterhomes.org.au/ or contact our Policy and Advocacy Team at firstname.lastname@example.org.
Disability Doesn't Discriminate Campaign
If you listened to our latest episode of Have The Nerve you would have heard about the differences in aged care funding for older Australians with a disability, with particular focus on funding if you are ineligible for the NDIS.
In the episode Megan, from our Policy and Advocacy team, spoke about how aged care for older Australians with a disability is capped and often means tested, meaning that not only are services and supports limited but often older Australians have to prioritise important care and think about what they need to live without.
We would love for you to get on board and sign the petition. Head to https://disabilitydoesntdiscriminate.com.au/.
‘Independent assessments are dead’. Let’s get back to the drawing board!
Following last Friday’s meeting between the state and territory Disability Ministers and Minister for the National Disability Insurance Scheme (NDIS), Linda Reynolds, it was announced that independent assessments (IAs) in their current form will not go ahead.
As Shadow Minister for the NDIS, Bill Shorten put it “Independent assessments are dead, at least, dead for the time being…it’s back to the drawing board”.
This announcement followed a series of reports released last week by the National Disability Insurance Agency (NDIA) and the NDIS’s Independent Advisory Council (IAC). The IAC is comprised of members from a wide range of disability and advocacy sectors, who bring lived experience and/or expertise of disability to be the voice of the participants.
The IAC was asked to provide guidance to the NDIA on the specific changes needed for its reform proposals to access and planning, which included IAs and the introduction of the Personalised Budget Tool (PBT). In its comprehensive, frank report, the IAC made numerous recommendations, including for:
- A halt to IAs in their current form
- A new co-design process of IAs and the PBT in partnership with the disability community
- A right to review IA reports to ensure they are a true and accurate reflection of a person’s functional capacity
- The development of a clear and transparent IA quality assurance and complaints process
- An eight week public consultation on any draft legislation that seeks to reform the NDIS Act and
- The development of a partnership agreement with the IAC and representatives from Disabled Persons’ Organisations to outline expectations for working together and in co-design processes.
The IAC report emphasised that the NDIA needs to re-build trust with the disability community and be transparent about proposed changes and challenges facing the Scheme.
Last week the NDIA also released its Interim Evaluation Report of its Second IA Pilot. Since the inception of the second IA pilot until May 31, 2021 a total of 3,759 IAs had been completed. However, the report was based on only 948 survey responses, of which only 378 were participants. In other words, only 10% of participants provided direct feedback on their IA experience.
Of the 948 responses, 70% rated their experience as good, very good or excellent. While the majority of respondents felt that an assessor’s knowledge of a participant’s disability was the most important factor in having a positive experience, only 49% of respondents found that their assessor had a good amount of knowledge regarding the participant’s disability.
Only 65% of respondents felt that their IA report was an excellent or very good reflection of their functional capacity and many felt that reports needed more information about a person’s goals and support needs.
The NDIS Minister has accepted the first recommendation and the Disability Reform Ministers have agreed to work together with people with lived experience of disability to design a person-centred model to deliver consistency and equity across access and planning outcomes.
However, finding a pathway for reform to NDIS legislation to include the NDIS Participant Service Guarantee, Tune Review recommendations and fraud measures are still on the agenda for the coming months, so we look forward to providing any feedback on draft bills released soon.
So, what now?
Well, it seems like the disability sector can look forward to being at the table in a future co-design process for a new model of reforms. What form this takes is yet to be determined.
SCIA looks forward to contributing to this process as much as possible and amplifying the voices of its members in any reforms moving forward.
Written by Megan Bingham, our systemic advocate from our Policy and Advocacy Sydney Team.
Membership is free
Membership for people with a disability and their immediate family and carers is free.Join the SCIA community
WHAT PEOPLE ARE SAYING
SCIA's Social Enterprise has changed my life. After training and building confidence, I've been working for the last 12 years.