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#SCIAW2020: NeuroMoves Adelaide client Hayley shares her story
NeuroMoves Adelaide client, Hayley Sands, shares her story with the NDIS, as part of Spinal Cord Injury Awareness Week. The South Australian is continuing to work towards her goals from the comfort of her own home.
Now 20, Hayley was 13 when she suffered a whiplash injury after diving into a pool, resulting in tetraplegia.
Although she has feeling in her whole body she was unable to move her body much until she started with NeuroMoves, which has given her increased upper limb and upper body strength through regular weekly sessions.
Spinal Cord Injury Awareness Week: September 7 - 13
This year's Spinal Cord Injury Awareness Week highlights a very important message: Accessibility equals opportunity.
Access is not only about physically accessing venues and services, it's about providing a comprehensive, accurate information for people to be able to find quickly and easily.
Information is key to making society a better, more inclusive, place and empowering everyone within it.
As businesses and tourism destinations recover from the impact of COVID-19, it’s more important than ever to provide people with spinal cord damage the opportunity to participate in and contribute to their local communities.
When a community is accessible, everybody wins.
During the week we will be updating you with information to empower you to make more informed choices and things you can do to help pave the way to better accessibility.
Here are some tips and recommendations:
- Advocacy is one of our most powerful ways to make sure that people know how important access is, whether out and about out in the privacy of our own homes. SCIA's Policy and Advocacy team is always on hand to advise you on systemic, individual, family and self advocacy access matters.
- Do you have a public access concern? Don't wait. Approach your local council and ask to speak to a disability access officer, or someone who is specific to disability access and inclusion. Find your local council contact information for New South Wales, Victoria, South Australia, Northern Territory, Australian Capital Territory, Queensland and Tasmania. Our Policy and Advocacy team will be able to assist you making contact with your LGA if needed.
- Our Peer & Family Support team share their thoughts about how access has changed for them since their injuries. Watch their video.
- Want to know about the National Disability Strategy? Read the Australian Local Government Association's Disability Inclusion Planning - A Guide for Local Government
- Knowledge about accessible travel accommodation is extremely important. Accessible Accommodation covers accommodation for all mobility needs.
- Beach accessibility is one of our most popular topics. Everyone deserves to be able to access public spaces. Accessible Beaches have provided a comprehensive directory to accessible beaches right across the country.
- Accessibility to specialised services, such as exercise physiology, is incredibly important. NeuroMoves Adelaide client, Hayley Sands, shared her story about how our NeuroMoves service helped her after her spinal cord injury.
Free continence support
Bowel and bladder dysfunction should not stop you from living your life to the fullest. Spinal cord damage can affect the nerves in the spinal cord that control bladder and bowel function, leading to incontinence, with regular routines and management essential to prevent serious health complications.
Spinal Cord Injuries Australia (SCIA) has proudly partnered with Coloplast to provide a range of initiatives to promote effective continence care and support services to improve health and wellbeing - especially during these challenging times.
If you need support or assistance for National Disability Insurance Scheme (NDIS) continence funding or with any other issues, then Coloplast’s team can be your guide to:
- Help you understand what is being recommended and how best to prepare if Covid-19 affects your plan
- Assist you to prepare for your NDIS planning or review meeting when it comes to your continence solutions
- Discuss your personal continence needs in a safe environment
- Support you with finding continence solutions that may better suit your lifestyle
This partnership allows SCIA and Coloplast to provide the highest level of education, training and support to help reduce the burden that can follow when you need extra support with your bladder and bowel management.
“SCIA has enjoyed a strong relationship with Coloplast for many years which has allowed us to provide the best outcome for our community. We share the same values and mission to strengthen support for those in the spinal cord injury community and are thrilled to share this additional support to help make lives easier for those with intimate healthcare needs”, says Dianne Lucas, CEO Spinal Cord Injuries Australia
For further information regarding this free support contact 1800 653 317 to speak to a friendly Coloplast team member.
The Federal Government supports all Tune Review recommendations
In January, we mentioned that SCIA fully supported the 29 recommendations of the Review of the NDIS Act and Participant Service Guarantee by David Tune.
We are pleased to say that the Federal Government have just annoucned that they also support all 29 recommendations of the Tune Review including:
• Allowing participants to use their funding flexibly across core and capacity building
• Giving plan managed participants the same flexibility as self managed participants
• Improving NDIA decision making, with a Participant Service Guarantee from 2021
• A Participant Service Charter and Participant Service Improvement Plan to be released later today
• Outlining when Support Coordination should be funded in a plan and when it should be delivered by an independent provider
• Fairer planning for children and families
• A $20 million outreach program to better engage Aboriginal and Torres Strait Islander, culturally or linguistically diverse communities and people with psychosocial disability
This morning the ABC quoted NDIS Minister Stuart Roberts saying, "No longer will participants have certain funds in core support, certain funds in capacity support. They'll have flexibility right across their plan with perhaps maybe a couple of exclusions, such as specialist disability accommodation or home modifications."
You can read the full article here. If you would like to know more about these changes contact our Policy and Advocacy team on 1800 819 775.
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