Your central hub for information, support tools, and practical advice.

We have a wealth of knowledge to share with you about living with a spinal cord injury (SCI), and have pulled this together in this section to help you access the information you need, when you need it.

Wheelchair Skills – Wheeling Across Grass

Jason from our Peer and Family Support team is here to teach you how to wheel across grass with your...

Celebrating Strength in Community: Recognising the community of carers, friends and families after an SCI

Two-thirds of people with spinal cord injury agree that ‘the role of family in terms of emotional, physical and financial...

Pets in Crisis – Services and Supports

Service animals are of huge importance to our community and keeping your animal safe during an emergency is paramount. Here...

I’m a person with disability and experiencing domestic violence

NSW Department of Communities and Justice has put together information for people with physical, intellectual, psychiatric and sensory who are...

Self Defence for People with Disabilities

Self-defence is important for everyone. Here are some resources we've found that may help you develop your skills to feel...

Domestic, Family and Sexual Violence Services

The Australian Centre for Disability Law offers legal advice and help for people with disabilities.

We have some questions:

How many times a year do you think the average person with a disability, requiring continence products, would need to go to the bathroom?
How much does it cost?
What does someone do when they can’t afford basic medical necessities to go to the bathroom?
What happens if you are an immigrant who needs continence products and you don’t qualify for any funding at all?

We’ve heard of Period Poverty, but we’re calling this Continence Poverty. For people with disabilities this is a huge problem that no one talks about.

Edwina Spooner from Coloplast is back and we talk about the very sobering realities for a lot of people who need to use continence supplies and don’t have access to a lot of funding, may not have any funding at all and the ripple effect it creates on the person and on the health system.

You can listen to the podcast on our Youtube channel or select your preferred platform for our podcast, Have The Nerve, at the bottom of the post.

Information in this episode:

Coloplast
Continence Aids Payment Scheme (CAPS)
National Disability Insurance Scheme (NDIS)
My Aged Care
Continence Foundation of Australia
Parliament of Australia – Find your local Member
Have The Nerve Episode Three – What you should know about SCI and bladder management.
Have The Nerve Episode Four – What you should know about SCI and bowel management.

Credits: Susan Wood has written, produced and edited this episode. Logo art by Cobie Ann Moore.

Spinal Cord Injuries Australia is a for-purpose organisation that supports people with a spinal cord injury and other neurological conditions.