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    How You Can Be Involved & Our Campaign Work

    Getting Involved in Advocacy

    Our Representative Advocacy team works collaboratively with our Advocacy Advisory Group to highlight and speak up about the issues that impact people with spinal and neuro conditions.

    Alongside this, our Systemic Advocacy team shine a light on national and state issues that affect people with SCI and other neuro conditions through dialogues, submissions, policy briefs and engagement in stakeholder working groups.

    We don’t just talk, we listen too.

    Your story is important. You can get involved by joining a local Advocacy Community Network, an online forum or workshop or by joining our advocacy community and receiving our monthly, Our Fellow Advocates, email communications.

    Our monthly communications update you on our advocacy initiatives, consultations, research, SCIA priorities and more. Use the contact us form to sign up to our advocacy mailing list.

    If you have an important issue you would like to talk to us about you can contact our Representative Advocate. Frequently raised issues inform Advocacy Campaigns that raise awareness, influence decisions and mobilise support.

    Navigate below to join one of our local face-to- face Advocacy Community Network events, read about our campaigns, and find out how you can get involved.

    Advocacy Community Networks

    Member engagement and peer networking are essential for effective representative advocacy.

    To boost our member involvement in local communities, we host Advocacy Community Networks (ACN) across NSW and the ACT. ACNs offer a welcoming space for people with lived experience of disability, their family members and carers opportunity to engage in networking, connect, share and discuss experiences and issues that matter to them, as well as provide support to encourage group and self-advocacy.

    Currently, we run in person, and online, ACNs in Moree, Wagga Wagga, South Eastern Sydney, Parramatta, Port Macquarie, the Blue Mountains and the ACT. Visit our events page for more details. 

    Kay Hudson

    Advocacy Advisory Group

    Kay is representing the Blue Mountains and Penrith. Kay retired last year from working. She has been doing volunteer work...
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    Rex Cochrane

    Advocacy Advisory Group

    Hi, my name is Rex Cochrane and I will be representative for Central Western NSW. I'm a very proud Nhunggaburra...
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    Noel Hiffernan

    Advocacy Advisory Group

    Noel is our Mid North Coast representative. Noel has a long history of volunteering in local communities as well as...
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    Alison Cook

    Advocacy Advisory Group

    Alison is our Illawarra Shoalhaven representative and has lived with her disability since 1999. In all the areas that Ali...
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    Jayne Boardman

    Advocacy Advisory Group

    As our Western Sydney Representative, Jayne is passionate about advocacy due to her 25-year career in Local Government Human Services....
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    Raja Relf

    Advocacy Advisory Group

    Raja is our Eastern Sydney Representative and has lived with her SCI since 1985. She lives with her husband, Mark,...
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    Tanya Fitch

    Tanya is our New England representative. She has a deep passion for her community and for improving services and facilities...
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    Jordan Kramp

    Jordan sustained a spinal cord injury in a kite surfing accident when he was aged 19 that left him a...
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    Eileen Guy

    Advocacy Advisory Group

    Eileen is our Northern Rivers representative. She is a “sandwich”carer and a retired social worker whose work has been dedicated...
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    Latest Campaigns at SCIA

    Accessible Housing

    For many people with disabilities, accessible housing can hard to find. SCIA is working with real estate agencies to change the narrative with just three immediate and simple actions, so real estate agencies can ensure housing access is clear from the front door – meaning people with disabilities don’t get turned away from inspections due to a lack of information.

    Contact our Advocacy Team Today

    Want to know more?

    If you need support from any of our Advocacy teams or to get involved in our campaign work, attend an event or start an Advocacy Community Network in your area, please fill in our form and we will get in touch with you shortly.

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