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    Skin Management

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    Health Maintenance Toolkit for People with Spinal Cord Injuries

    Spinal cord injuries can be life-changing and affect mobility and overall well-being. Maintaining overall health is always essential for people...
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    Living with Paralysis – Christopher & Dana Reeve Foundation

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    Does regular standing improve bowel function in people with spinal cord injury?

    Twenty community-dwelling people with motor complete spinal cord injury above T8 participated in a 16-week trial.
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    Chronic Complications of Spinal Cord Injury

    Spinal cord injury (SCI) is a serious medical condition that causes functional, psychological and socioeconomic disorder.
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    Peer Support Education Series: Pressure Injury Protection and Prevention

    This presentation will cover pressure injuries and pressure care, as well as, causes, preventative measures, appropriate assistive technology and more.
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    Have The Nerve – YouTube Playlist

    If you aren't able to access our podcast, Have The Nerve, on a streaming service, access our podcast on our...
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    Care of ageing skin

    Pressure ulcers are one of the major complications of SCI and it is a topic you will be reminded of...
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    Model for wound care

    Pressure injuries are common for people living with spinal cord injury and other physical disabilities that affect mobility and sensation....
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    Skin Care after Spinal Cord Injury

    Limited mobility coupled with impaired sensation can lead to pressure sores or ulcers, which can be a devastating complication.
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    Spinal cord injury (SCI) can be life-changing and affect mobility and overall well-being. Maintaining overall health is always essential for people with spinal cord injuries. That’s precisely where the maintenance health toolkit steps in.

    Who Are the Minds Behind the Health Maintenance Toolkit?

    The Health Maintenance Toolkit for people with SCI is a product of the SCI Wellness Project, a collaborative project between The University of Sydney, Royal Rehab, NSW Health Northern Sydney Local Health District, NSE Government Agency for Clinical Health and iCare. People with SCI, GPs and expert clinicians have been working together to develop the comprehensive toolkit based on professional and life-experienced knowledge. The core project team consisted of Professor James Middleton, Dr Mohit Arora and Professor Ashley Craig.  SCIA’s Policy and Advocacy Manager Tony Jones, has also contributed to this remarkable project.

    What is the purpose of the toolkit?

    People with spinal cord injuries often contend with complex health conditions. Beyond relying solely on experts and professionals, the toolkit empowers individuals to proactively manage their health-related needs, allowing them to take charge of their own care. With evidence-based information, practical tips, and helpful guides, the SCI health maintenance tool can efficiently help you manage your health across six critical areas: mental health, bladder, bowel, skin, pain and autonomic dysreflexia.

    maintenance health toolkit for spinal cord injuries

    How does the toolkit empower you to manage your health?

    Each section of the toolkit is thoughtfully organized into six stages, guiding users through every step of the process:

    • Understand your body, health and well-being.
    • Prevent problems.
    • Check if you have a problem.
    • Check how severe the problem is.
    • Manage problems.
    • Track health patterns and issues.

    You can select the area that aligns with your needs among the six modules. Additionally, downloadable PDF versions of the tools are available, ensuring easy access at any time.

    You can also download the complete version of the SCI Health Maintenance Toolkit with all six modules above.

    How does the toolkit aid in identifying health issues?

    Beyond the six dedicated tools, the toolkit offers a quick and efficient method for identifying health problems, gauging their severity, and assessing their impact on daily life.

    The Quick Check Tool covers four essential areas: bladder health, bowel health, skincare, and pain management.

    maintenance health toolkit for spinal cord injuries

    It is designed to address one problem at a time. If you are experiencing more than one problem, the step can be repeated to fit your needs.

    In addition to the Health Maintenance Tool, an SCI Health Toolkit app is available, providing convenient access to the Quick Check tool, health tracking and monitoring features, and more.

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