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    Health Maintenance Toolkit for People with Spinal Cord Injuries

    Spinal cord injuries can be life-changing and affect mobility and overall well-being. Maintaining overall health is always essential for people...
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    100 Real Life Stories about Having a Spinal Cord Injury

    Facing Disability has collated over 100 interviews with people about having a spinal cord injury
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    Why Some Wheelchair Users Wish They’d Chosen a Colostomy Sooner

    This article provides first hand knowledge of people who have decided to improve their bowel management by having the surgical...
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    Online Network Forum September

    Duncan Wallace from SpinalCure Australia talked about and updates on the latest in research both in Australia and around the...
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    To stoma or not to stoma

    Ian Douglas shares how getting a colostomy earlier in the year has dramatically improved his life, freeing him from a...
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    Living with Paralysis – Christopher & Dana Reeve Foundation

    A comprehensive resource on all aspects of spinal cord injury (SCI).
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    Disability, Dating, Sex, and Relationships Roundtable

    A roundtable discussion about disability and sex. Hosted by Hannah Witton.
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    Does regular standing improve bowel function in people with spinal cord injury?

    Twenty community-dwelling people with motor complete spinal cord injury above T8 participated in a 16-week trial.
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    Chronic Complications of Spinal Cord Injury

    Spinal cord injury (SCI) is a serious medical condition that causes functional, psychological and socioeconomic disorder.
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    Spinal cord injury (SCI) can be life-changing and affect mobility and overall well-being. Maintaining overall health is always essential for people with spinal cord injuries. That’s precisely where the maintenance health toolkit steps in.

    Who Are the Minds Behind the Health Maintenance Toolkit?

    The Health Maintenance Toolkit for people with SCI is a product of the SCI Wellness Project, a collaborative project between The University of Sydney, Royal Rehab, NSW Health Northern Sydney Local Health District, NSE Government Agency for Clinical Health and iCare. People with SCI, GPs and expert clinicians have been working together to develop the comprehensive toolkit based on professional and life-experienced knowledge. The core project team consisted of Professor James Middleton, Dr Mohit Arora and Professor Ashley Craig.  SCIA’s Policy and Advocacy Manager Tony Jones, has also contributed to this remarkable project.

    What is the purpose of the toolkit?

    People with spinal cord injuries often contend with complex health conditions. Beyond relying solely on experts and professionals, the toolkit empowers individuals to proactively manage their health-related needs, allowing them to take charge of their own care. With evidence-based information, practical tips, and helpful guides, the SCI health maintenance tool can efficiently help you manage your health across six critical areas: mental health, bladder, bowel, skin, pain and autonomic dysreflexia.

    maintenance health toolkit for spinal cord injuries

    How does the toolkit empower you to manage your health?

    Each section of the toolkit is thoughtfully organized into six stages, guiding users through every step of the process:

    • Understand your body, health and well-being.
    • Prevent problems.
    • Check if you have a problem.
    • Check how severe the problem is.
    • Manage problems.
    • Track health patterns and issues.

    You can select the area that aligns with your needs among the six modules. Additionally, downloadable PDF versions of the tools are available, ensuring easy access at any time.

    You can also download the complete version of the SCI Health Maintenance Toolkit with all six modules above.

    How does the toolkit aid in identifying health issues?

    Beyond the six dedicated tools, the toolkit offers a quick and efficient method for identifying health problems, gauging their severity, and assessing their impact on daily life.

    The Quick Check Tool covers four essential areas: bladder health, bowel health, skincare, and pain management.

    maintenance health toolkit for spinal cord injuries

    It is designed to address one problem at a time. If you are experiencing more than one problem, the step can be repeated to fit your needs.

    In addition to the Health Maintenance Tool, an SCI Health Toolkit app is available, providing convenient access to the Quick Check tool, health tracking and monitoring features, and more.

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