Parenting With a Spinal Cord Injury

Forum Parenting, Family & Disability Parenting With a Spinal Cord Injury

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    • #5025
      BrankaPupovac
      Participant

      I’ve been a T10 Incomplete paraplegic, full time wheelchair user for 26 years & i’m a mum to an active 6 year old boy. Pregnancy was smooth. I put that down to being very fit when I fell pregnant & the fact I kept handcycling & gym work throughout. I gave birth via a caesarian. Apart from the anaesthetist struggling initially to get the epidural to work on my left side there were no issues. I can’t recommend enough though how important it is to look after yourself post birth. Unfortunately I didn’t & I found that physically it took me way longer to heal. I honestly thought i’d need a lot of help with looking after my baby but I managed to do it all on my own. I’d love to meet other mum’s or dad’s here so we can share experiences, help others & learn from one another.

    • #5711
      Amy.t3
      Participant

      Honestly, i think you are superwoman. I have an incomplete T3 injury. I am able to walk, but with great difficulty – i only have the level of mobility i do because i was at the gym 6 days a week prior. I have brown sequard syndrome, meaning i have sensory issues on one side of my body, and mobility/strength issues on the opposite side. I have a 5 year old son with autism spectrum disorder. Parenting him, when i am tired, and in pain is so bloody hard.

    • #5875
      BrankaPupovac
      Participant

      We can both be superwomen! My son has some sensory processing issues & on days that he’s more dysregulated it certainly is harder to parent. Generally i’m pretty lucky when it comes to pain but just recently i’ve developed sciatica issues when i stand on my left side which has made standing very difficult. Is your son at school?

      • #5880
        Amy.t3
        Participant

        Uggh sciatic pain is the worst. I have been having random shin pain on my left leg recently, which sets my brain in to overdrive because it doesnt think i have a left leg.

        I find the sensory side of asd is definitely the hardest. When my son is dysregulated, its hard to do anything. If we have to leave the house my anxiety shoots right up which i know doesnt help because he feeds off me when it comes to emotions. Thankfully he thinks my 4 wheel walker is a ride, so i can get him to sit on the seat, but then the extra weight means i tire really easy.  My son will be starting school next year, which just means i will have more time for therapies lol.

    • #5965
      BrankaPupovac
      Participant

      I hope your random shin pains settle down & it’s not a permanent thing & if it is you find a way to soothe it.

      Having a child with sensory issues certainly requires a lot more patience & understanding. I think not worrying what others think & doing what’s best for you & your son is most important. My son loves riding on my lap too. Have you thought of getting some kind of mobility scooter for days you are exhausted or in pain? There are so may bits of equipment that can make your life easier. Have you chosen a school for your son? Is her excited about going to school? It does free your days up & its wonderful to see my son growing & learning so much but you aren’t left with much time during the week to just be with them.

       

       

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