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Stem cells - public forum event

From the 25th of August until the 1st of September, the National Stem Cell Foundation of Australia is presenting free public forums in Sydney, Brisbane, Adelaide and Melbourne with two of America's top stem cell scientists, Dr Tsukamoto and Professor Weissman. Titled "Stem cells: the potential, the reality and the dangers", the scientists will be joined on stage by local experts in each city, with opportunities for questions from the audience. For dates, further details and bookings visit www.stemcellfoundation.net.au. For enquiries please contact the NSCFA office on 03 9524 3166.

Thursday, 14 August 2014

 

NDIS Evaluation study

The National Institute of Labour Studies at Flinders University is running an evaluation of the NDIS trial and would like to hear from a number of people with a disability who have joined the NDIS trial. The evaluation team want to find out how the NDIS has been working for participants and how the NDIS trial has affected their life. The study will require just two interviews - once in 2014 and again in 2015. The interview will take around one hour and it can be conducted at a place and time that is most convenient for the participant.  $50 will be provided for each interview.

If you would like to take part in the evaluation please contact the evaluation team on 1800 265 648 by the 25th of August 2014. To read more about the evaluation you can visit the website at http://ndisevaluation.net.au or email ndisevaluation@flinders.edu.au

 

Wednesday, 13 August 2014

 

National Disability Insurance Scheme Update

From Tony Jones

Spinal Cord Injuries Australia Policy & Advocacy Officer

NDIS - Every Australian Counts

July 1, 2014 marked the first year anniversary of the NDIS (National Disability Insurance Scheme) for the four trial sites in the Hunter (NSW), Barwon (VIC), South Australia (for children under six years of age) and in Tasmania (for young people, aged 15 to 24 years). The ACT, Western Australia and the Northern Territory have signed agreements with the Federal government to start their trials and Queensland has also agreed to full commencement starting in 2016, making it a truly national scheme.

According to the first year progress report, 6434 participants have been found eligible for the scheme, with 5414 having an approved plan by the end of March 2014. At this stage this is a small number and only early days; full implementation across the entire country will progress gradually over the next few years until 2018 – 2019, which will see around 400,000 to 450,000 participants with the full cost expected to be up to $22 billion each year. The average package cost so far for each participant is just over $32,000 and head office has moved from Canberra to Geelong. Read More »

Wednesday, 23 July 2014

 

Walk On client Matt Battista features on SBS's Insight program

Walk On client Matt Battista featured on SBS's Insight program on Tuesday 15 July. The program focused on whether current stem cell treatments are cause for hope or are just misleading hype. Matt joined Perry Cross in sharing his experience of stem cell therapy to treat a spinal cord injury.

The full episode aired on Tuesday 15 July. You can watch the episode and read the transcript here.


Matt Battista at Walk On in Perth

Matt Battista training at our Walk On gym in Perth

Monday, 14 July 2014

 

Pain and temperature preservation following SCI

Over the last two decades, in collaboration with the spinal cord community and spinal injury units around New South Wales, members of the Pain Management Research Institute (Kolling Institute), University of Sydney have been working to improve the management of people with pain following spinal cord injury.

To improve the way pain is assessed following spinal cord injury an evaluation is being conducted into the benefit of a sensitive nerve test (Contact Heat Evoked Potentials) to detect surviving pain and temperature nerves in the spine following spinal cord injury. This test measures brain activation (electroencephalographic recording or EEG) following a computer driven heat pulse to the skin. The presence of a brain wave indicates communication between the skin and brain and intact temperature and pain pathways. This test is likely to be more sensitive and objective than the current approach of asking whether cold or heat is felt

The study is recruiting people with complete (preferably thoracic level) spinal cord injuries with or without nerve pain, also looking for healthy controls without pain or injury.

The study involves one visit to Royal North Shore Hospital and is expected to take approximately 3 hours. An amount of $120 will be provided to assist with the costs of attending.

If you have any questions, would like to view the information sheet or would like to participate in this study please email Dr Paul Wrigley paul.wrigley@sydney.edu.au or phone 02 9926 4859.

Monday, 16 June 2014

 

Professor Glen Davis awarded an Order of Australia Medal

Congratulations to Professor Glen Davis who was awarded an Order of Australia Medal for service to science and community health through developing and promoting spinal cord injury therapies. Professor Davis helped to establish Walk On at the University of Sydney and continues to support the program by providing advice from a research and scientific perspective, aiding with the development and assessment of the program. He also oversees a PhD student who is investigating the benefits of Walk On. He is pictured here at our recent Independence Expo presenting on the importance of exercise for people with spinal cord injury and other physical disabilities.

Read more about Professor Glen David here: http://sydney.edu.au/health-sciences/about/people/profiles/glen.davis.php

To see the fill list of Queen's Birthday honours visit http://bit.ly/1hL3DWZ

Wednesday, 11 June 2014

 

Walk On client Ben Kende

Walk On client Ben Kende has been profiled in an article in the South China Morning Post about spinal cord injury. Ben was injured in 2010 in an under-20s rugby tournament. Today he is studying at university and attends Walk On. "His upper body has got stronger all the time with constant therapy," says Ben's mother Jennifer. Read the article here: http://www.scmp.com/lifestyle/health/article/1524313/recent-scientific-advances-are-giving-hope-spinal-cord-injury

Thursday, 05 June 2014

 

Mark Tonga Clubs NSW Community Heart award

Congratulations to Mark Tonga, one of our Policy and Advocacy team members, for his recent win of the Clubs NSW Community Heart award.

Mark was nominated by the Castle Hill RSL club for his on-going work in fighting for better outcomes for people with disabilities.

ClubsNSW CEO Anthony Ball said that while this year’s competition was fierce, the work Mark Tonga has done advocating for a better social environment for people with disabilities made him the front runner when it came to deciding the winner of the Heart of the Community Award, “Mark’s commitment to the local area, his local club and supporting other people with disabilities has really showed that Mark genuinely is the Heart of his Community.”

http://www.dailytelegraph.com.au/newslocal/the-hills/nsw-community-heart-winner-mark-tonga-is-king-of-clubs-at-castle-hill/story-fngr8i1f-1226933416217

Monday, 02 June 2014

 

Our new CHOICES house

SCIA was the successful bidder at an auction for what will be our new CHOICES house. The home will be designed to help people transition from hospital to home after a spinal cord injury. The property is on a big sunny block of land in Gymea, close to shops, cafes, the train station and parklands. We will now make plans to knock down the existing house and redevelop the site as a showcase for the principles of accessibility and universal design.


Monday, 26 May 2014

 

Our new Patron

His Excellency General the Honourable Sir Peter Cosgrove AK MC (Retd), Governor-General of the Commonwealth Of Australia is the new Patron of Spinal Cord Injuries Australia.

Spinal Cord Injuries Australia is proud to have His Excellency as its new Patron. Sir Peter Cosgrove was pleased to accept the role and sees the work of SCIA as complementary to his responsibilities as Governor-General and to themes of personal interest to him.

Peter Cosgrove was born in Sydney in 1947. He attended Waverley College in Sydney and graduated from the Royal Military College in Duntroon. Early in his career, he fought in Vietnam and he was awarded the Military Cross in 1971 for his performance and leadership.

As Commander of the International Task Force East Timor, Peter Cosgrove was responsible for overseeing that country’s transition to independence.  For his leadership, he was promoted to Companion in the Military Division of the Order of Australia (AC). Promoted to Lieutenant General, he was appointed Chief of Army in 2000.  After further promotion to General, he served as Chief of the Defence Force from 2002-2005.  He retired from the Australian Defence Force in 2005.

He was named Australian of the Year in 2001 and in March 2014, Prime Minister Tony Abbott announced that General Cosgrove would become a Knight in the Order of Australia when sworn in as Governor-General.

Thursday, 15 May 2014

 

Help improve future SCI clinical trials

Researchers at the University of Miami are conducting a new survey for people living with spinal cord injuries (SCI) over the age of 18 to provide direct input on factors that encourage or discourage participation in clinical trials.

The survey is going out to organisations and contacts in the US, Canada, Australia and New Zealand.

Very rarely are people with SCI asked for their input on factors involved in the design of clinical trials.

As a result, many people may end up qualifying for trials, but decide not to participate because they are overly complicated or very burdensome.

Here is your opportunity to provide direct input on what factors about clinical trials encourage or discourage you from participating.

The survey only takes about 10 minutes to complete and can be found here https://www.surveymonkey.com/s/sciclinicaltrialssurvey

They need input from as many people as possible so please feel free to share this survey with your SCI friends, contacts and organisations.

You can Contact Dr. Kim Anderson with any questions KAnderson3@med.miami.edu.

Wednesday, 14 May 2014

 

Future breakthroughs in spinal cord injury treatment closer with new research scholarship

The prospect of future breakthroughs in spinal cord injury treatment has been boosted with the joint announcement today of a new medical research Fellowship, according to the Royal Australasian College of Physicians.

Duncan Wallace, spokesman for Not-For-Profits SpinalCure Australia and Spinal Cord Injuries Australia said the David Prast Research Establishment Fellowship, valued at up to $450,000 over three years, will fund research into spinal cord injuries and aim to improve outcomes for the 12,000 Australians living with spinal cord injury.

The Fellowship is a joint partnership between Not-For-Profits SpinalCure Australia (SCA), Spinal Cord Injuries Australia (SCIA) and the Royal Australasian College of Physicians (RACP).

“The Fellowship was established to commemorate the work of the late spinal injuries advocate Australian David Prast, who despite a spinal cord injury, used his drive and determination to focus on better initiatives in the spinal field, particularly in medical research, until his death in November 2011,” said Duncan Wallace.

“These are exciting times for spinal cord injury research - stimulating the spinal cord below the level of injury has shown remarkable success in rats and now thrilling results in four young men as reported recently in the medical journal Brain.

“The men, who have been paralysed for years, were able to move their legs voluntarily with the help of an implanted device that delivered an electrical current to the lower spinal cord, known as epidural stimulation.”

“So we expect that the successful candidate will be working with international leaders in the field with a view to bringing epidural stimulation and other technologies back to Australia.”

Applications for the Fellowship close on Monday 23rd June 2014. To read about the Program and apply for the Fellowship please visit here.

Wednesday, 14 May 2014

 

DIY Home Modifications - Consumer Survey

The Home Modification Information Clearinghouse at the University of New South Wales is undertaking research into DIY home modifications. 

Do you know anyone that has done a home modification?

Have you, your carer, or someone you care for ever undertaken a do-it-yourself home modification project?

Was the modification a grab rail, hand-held shower, level access shower recess, ramp, handrail, or something else?

Your experiences matter!

The Home Modification Information Clearinghouse would love to hear from you if you:

  • Have experience of a do-it-yourself home modification project
  • Live in New South Wales
  • Are over 18 years old

You are invited to complete a short survey so that it can be better understood why people choose to do home modifications DIY and more importantly, if home modifications done in this manner have made a difference to your quality of life.

The research aims to develop resources to assist people with disability and their carers to undertake do-it-yourself home modification projects safely and appropriately.

This research is being funded from Ageing, Disability and Home Care, NSW Department of Family and Community Services. UNSW Ethics Approval no. 145013.

If you require any assistance or have any questions please feel free to contact Nicole McNamara ph: 02 9385 4529 email: nicole.mcnamara@unsw.edu.au

See here to access the survey and download the Participant Information Statement.

Tuesday, 13 May 2014

 

Living with Pain Surveys 2014

Tell us about your experience of living with pain.

This year, in the lead up to National Pain Week, Chronic Pain Australia is conducting two 'Living with Pain' surveys - one for people who live with chronic pain and one for those who care for someone with pain. If you feel you belong to both categories, please complete both surveys.

The surveys will be an annual 'snapshot' of the experience of living with chronic pain in Australia, with the results announced during NPW14. Please help us find out more about the experiences of people living with pain by completing the surveys and sharing the link with your friends and networks.

Click the link to go to the survey page:

http://chronicpainaustralia.org.au/index.php/2013-09-04-07-55-27/chronic-pain-surveys

If you have any questions, please email us.

Tuesday, 13 May 2014

 

Station out-of-order policy

Sydney Trains has a policy that whenever infrastructure is out of order, whether at the commencement of the journey or at the destination, a taxi be arranged to the next wheelchair accessible train station.

This policy is reasonable; however, it can take up to 45 minutes to execute as there are so many hurdles to overcome and different people to whom you needs must be communicated.

SCIA Policy & Advocacy team member Michael Magro has been working with Sydney Trains to alter the policy so that it includes transport to either the next accessible station or to the passenger’s final destination, such as home or hospital.

The distance of the destination must be deemed reasonable by Sydney Trains. Michael also worked with Sydney Trains to ensure that the appropriate signage be used at all times in the event of lifts not being in operation.

In a journey Michael took recently, the lift was broken at the other end and he requested a taxi but after initially being refused by staff, he had to demand to speak to the station master. 

After the best part of 45 minutes of not understanding his request, it was refused. As a result of this incident, Michael wrote to Sydney Trains management and copied in Gladys Berejiklian,

Minister for Transport recommending that all frontline staff have appropriate training sign off and that the emergency taxi information be published on the Sydney Trains website since there was a great failure to adhere to this policy.

SCIA received a commitment from Sydney Trains that all staff training will be signed off and policy information will be recorded on the website in due course.

Thursday, 08 May 2014

 

The David Prast Leadership Program

As part of the David Prast Leadership Program, The David Prast Research Establishment Fellowship is currently being advertised by the Royal Australia College of Physicians. To read about the Program and the David Prast Research Establishment Fellowship please visit here

Wednesday, 30 April 2014

 

Pressure Ulcer Prevention study


Did you know that the risk of developing a pressure ulcer increases significantly from 10 years after a SCI?1

Why do some people develop pressure ulcers and others don’t?

You can help find the answer!

This landmark AusCAN Risk study2, will follow 500 people across Canada and Australia for 3 years looking at the broadest range of risk factors ever investigated in SCI pressure ulcer prevention research. Its aim is to reduce the impact that pressure ulcers have on people’s lives through early identification of people at risk of skin breakdown. We are looking for people who have had a SCI for 10 years or more to participate.

Come along and:

  • Pressure map your seat3
  • Have an ultrasound of your bottom cheeks
  • Hear about the latest way to check for some early signs of skin damage

Plus, have your weight and height measured each visit.

Taxi expenses covered & receive a $25 Coles/Myer voucher each visit for participating.

What’s involved?

A few hours once a year (for 3 years) at your choice of RNSH or Assistive Technology & Seating clinic (Gladesville)4

What next?

If you have had a SCI for 10 years or more, (and have not had surgery for a pressure ulcer) call/sms or email Liz Dallaway 0498 599 097/ elizabeth.dallaway@sydney.edu.au to find out more.


1. Chen Y, DeVivo MJ, Jackson AB. Pressure ulcer prevalence in people with spinal cord injury: age-period-duration effects. Arch Phys Med Rehabil 2005;86:1208-13. http://www.archives-pmr.org/article/S0003-9993(05)00090-0/fulltext; Charlifue S, Lammertse DP, Adkins RH. Aging with spinal cord injury: changes in selected health indices and life satisfaction. Arch Phys Med Rehabil 2004;85:1848-53. http://www.archives-pmr.org/article/S0003-9993(04)00389-2/fulltext.
2 . Funded by the National Health & Medical Research Council of the Commonwealth Government of Australia.
3. This does not replace a Seating Assessment provided by a qualified health professional.
4. Assistive Technology & Seating clinic (Northern Sydney Local Health District) previously located at Royal Rehabilitation Centre Sydney.

Monday, 14 April 2014

 

Shower chair Commode study

IS YOUR MOBILE SHOWER COMMODE USABLE?! 

Emma Friesen of University of Queensland School of Health and Rehabilitation Sciences is conducting a study to assess the usability of mobile shower commodes. The study involves completing two surveys on SurveyMonkey. The first survey is available @ www.surveymonkey.com/s/eMASTstudy.

The study seeks the participation of people over 18 years old who have a spinal cord injury and use a mobile shower commode for showering and/or toileting.

 

For more information about the study contact Emma emma.friesen@uqconnect.edu.au.

Wednesday, 09 April 2014

 

Private vehicle and trip planning research

A study is being conducted by the UTS and OT Solutions private vehicle access, modification, and trip planning by people with disability.

Participation is invited sought from

  • drivers with disability;
  • those who have a modified vehicle for themselves or a family member with disability for private transport purposes; and
  • those who would like a modified private vehicle but have been unable to obtain one.


Read More »

Monday, 07 April 2014

 

Spinal cord injury in the media

With the recent injury of Alex McKinnon, spinal cord injury has been talked about and discussed in the media and SCIA staff and clients have contributed to the conversation. Watch Dan Holt from the SCIA Peer Support Team on Nine News Sydney, Walk On client Alex Walker on the ABC's 7.30 Report and listen to SCIA CEO Peter Perry on 2ser FM - Real Radio The Wire program. Also read a subsequent article that appeared on ABC online following the 7.30 Report.

Thursday, 03 April 2014

 

Chronic Pain Australia Research Participant Database

Are you interested in participating in research?

If so, you might be interested in registering your details in a new Research Participant Database.

Chronic Pain Australia is often asked by universities and other organisations to advertise research of interest to people with chronic pain, those who care about them, and/or healthcare professionals with an interest in pain. All such requests are considered by the Chronic Pain Australia research sub-committee to decide if a study is appropriate for the organisation to advertise.

The aim of the database is to create a list of people interested in being contacted about research that might be of interest to them. This would include only research that has university or other appropriate ethical approval. Only members of the research sub-committee of the Chronic Pain Australia Board of Management will have access to the database and will contact you. At no time will access to the database or personal details to anyone outside the Chronic Pain Australia research sub-committee be provided.

Please visit the Chronic Pain Australia website for more information and to register for the database.

Monday, 24 March 2014

 

Jess Hansson wins Exercise and Sports Science Association Practicum Supervisor of the Year

One of our superstar Exercise Physiologists in Melbourne, Jess Hansson, has won the 2013 Exercise and Sports Science Association (ESSA) Practicum Supervisor of the Year! Jess has been recognised for her significant contribution to student clinical placement and the learning and development needs of exercise physiology students. Winning this national award is an incredible achievement and one that is certainly well deserved. Congratulations Jess! Read more about Jess's win and her work at Walk On Melbourne here: http://bit.ly/ESSAaward.

Thursday, 13 March 2014

 

NDIS will help, says lobby group - local access issues in the Eurobodalla Shire

Peter Perry, our CEO, talks about local access issues and the National Disability Insurance Scheme (NDIS) in the Eurobodalla Shire in this article from the Batemans Bay Post. Please read the article here

Thursday, 06 March 2014

 

Aged care and the NDIS are not interchangeable

Tony Jones, a Policy and Advocacy Officer for Spinal Cord Injuries Australia and an Advisor to Jan Barham MLC, Greens NSW MP, has written an opinion piece for ABC’s Ramp Up about aged care and the NDIS.

Tony explores the implications of supports for people over 65 who acquire a disability being provided by the aged care sector instead of the NDIS.

He concludes that, “If people who acquire a disability after age 65 are to have an engaged and fulfilling life, three main issues will need to be addressed: suitable support to remain in the home and engage in the community, workforce support for those able to remain in employment, including working with employers to find ways to recruit and retain older workers with a disability, and adequate mainstream support to reduce the pressures through housing, healthcare and welfare.

"These concerns require a broad public policy approach from all levels of government and agencies. The demands will be beyond the scope of the aged care sector alone to address.”

You can read the full article here.

Thursday, 20 February 2014

 

People with spinal cord injuries maximising life choices

Minister for Disability Services John Ajaka today visited Spinal Cord Injuries Australia’s (SCIA) Walk On program in Lidcombe to see first-hand the support it provides to people with a spinal cord injury.

“SCIA received more than $3 million in funding from the NSW Government this financial year to cover services including accommodation, medical crisis support, nursing care and the Walk On program,” Minister Ajaka said.  

“Today I am experiencing the Walk On program first hand, including its intensive activity based rehabilitation program. This offers paraplegics and quadriplegics the chance to regain function through personalised exercise programs aligned to people’s goals. 

“With help from the program, each client is able to experience improvements in their physical, emotional and psychological wellbeing with some, amazingly even taking their first steps.”

The Chief Executive of SCIA Peter Perry said Spinal Cord Injuries Australia is committed to finding effective ways for people with spinal cord injuries to be able to live lives no different from anyone else.

“We help more than 90 clients per week get back on track after a spinal cord injury so they can become the masters of their own destiny, rather than recipients of care.

“The Minister’s visit affords us an opportunity to demonstrate the amazing outcomes and progress made by our clients as well as to meet the team who make it all possible.”

Minister Ajaka said it is wonderful to see the results which can be achieved by non-government organisations with the support of government funding.

“SCIA not only make a difference to people’s lives in NSW, but their expertise is also recognised and accepted internationally,” he said.

Thursday, 20 February 2014

 

Safe Day Initiative

A commitment to safety by Arrium Mining and Leighton Contractors has resulted in more than $50,000 being donated to charity.

The companies joined forces to create an added focus on safety as part of the Magnetite Optimisation Project at Arrium Mining's South Middleback Ranges Concentrator site by adopting a 'Safe Day Initiative'. For every one of the project days completed safely, Arrium Mining and Leighton Contractors each contributed $100 to a fund to be distributed to nominated charities.

Spinal Cord Injuries Australia was the major recipient, receiving 30 per cent of the proceeds. 

SCIA client Charles Brice represented SCIA to accept the generous donation generated by this fantastic initiative.

Click here to read the the Wyalla News article about the project.

Wednesday, 12 February 2014

 

Inequality in law report

In 2013, the Australian Human Rights Commission conducted a wide ranging consultation process to identify how people with disabilities deal with the barriers they experience to equality before the law. The report Equal Before the Law provides a snapshot of where equality does not exist, highlights services and programs that improve equality before the law for people with disabilities, and sets some directions by which change may occur. For further information and to access the report visit www.humanrights.gov.au/publications/equal-law.

Wednesday, 12 February 2014

 

PDCN survey of EnableNSW's PADP program

4 February 2014

The Physical Disability Council of NSW (PDCN) ran a survey between August-October 2013 which was completed by over 140 people who were clients of EnableNSW's Program of Appliances for Disabled People (PADP) which provides equipment, aids and appliances (commonly known as assistive technology). PADP services were centralised a few years ago with the aim of ensuring there were uniform policies and procedures for all eligible people throughout NSW, and to create some efficiencies in the system of which any financial savings would be used for PADP, and although the waiting times were initially reduced dramatically it is unfortunate that there are reports of waiting times exceeding 18 months. Please read the survey here. 

Tuesday, 04 February 2014

 

The sickening cost of hospital parking

Chris Nicholls, General Manager of Transitional Services at SCIA, has been quoted in an article in the Daily Telegraph and The Australian about parking costs at public hospitals in NSW.

The article says that public hospital patients, visitors and staff are being gouged $24 million a year for parking. Mr Nicholls spoke about the challenges families face when visiting relatives in hospital after a spinal cord injury.

"It is absolutely horrendous for these people when it comes to visiting their family members. If they live in Sydney they want to visit their relatives every day, but the parking costs so much a lot of these people couldn't possibly afford to drive."

You can read the article here.

Friday, 24 January 2014

 

Daredevils warned about jumping off Manly Wharf

SCIA CEO Peter Perry, speaking on behalf of the Australian Spinal Injury Alliance has been quoted in an article in The Manly Daily.

In a photo supplied to the newspaper, a man was captured jumping off the Manly wharf building into the waters about eight metres below. It is common for people to dive off the deck, but wharf property manager Chris Coore said it was the first time he had heard of someone jumping off the roof. Mr Perry said in the article that young people often did not realise how much a spinal injury could change their lives and encouraged young people to watch out for their mates.

You can read the article here.

Friday, 24 January 2014

 

Transport accessibility in Australia today

Greg Killeen, disability advocate and part of the SCIA Policy and Advocacy team, looks into the accessibility of transport services in major Australian cities in a three piece series for the ABC's Ramp Up Website.

Part 1 - In the first article of this 3-part series, he focuses on the most common modes of public transport - buses, trains and trams.

Part 2 - In the second article of this 3-part series, he focuses on coaches, charter buses and dedicated school buses.

Part 3 - The final article of this 3-part series looks into taxis and related services.

Friday, 24 January 2014

 

Jerome Wong to drive modified vehicle from London to Cape Town

Jerome Wong and Jessica

One of our adventurous fundraisers Jerome Wong is featured on the front page of the Hornsby Advocate. Jerome and his partner Jessica will drive a modified 4WD from London to Cape Town and are fundraising for SCIA to help other people with a spinal cord injury.

To support Jerome with his fundraising please visit: http://bit.ly/DonatetoLostAboundYou can read the article here.

Tuesday, 21 January 2014

 

Line of Sight Photography Exhibition

To celebrate International Day of People with Disability, a photography exhibition called Line of Sight was launched in Wollongong. The exhibition was displayed in Wollongong Central shopping centre and depicted the challenges that people in wheelchairs face when accessing their community. This project is the result of an exciting partnership between Wollongong City Council and Spinal Cord Injuries Australia Illawarra.

The participants hope the information will provide insight into some of the barriers that prevent wheelchair users from moving about the built environment freely and safely.

Thank you to Leicia Green, Jack Seddon, Richard Kramer, Steve Petrolati, Alex Trail and Bruce Veevers for their involvement in the project, here are some of the photos they helped produce. Read More »

Tuesday, 14 January 2014

 

Spinal Cord Injury and Chronic Pain Project

The Spinal Cord Injury and Chronic Pain Project funded by the Lifetime Care and Support Authority and conducted through the Agency for Clinical Innovation NSW (ACI NSW), aims to improve services and support for people with traumatic SCI and chronic pain. The consultation phase has now been completed and you can read Report 1: Consumer Needs Analysis and Report 2: Clinician Needs Analysis here: Report 1: Consumer Needs Analysis and Report 2: Clinician Needs Analysis.    

In international studies, chronic pain is reported in almost 70 percent of people with traumatic SCI, with 30 percent describing pain as severe. Pain can occur immediately after sustaining the injury, directly due to trauma and nerve damage, or years later with overuse or ageing of the musculoskeletal system.

The first and second phases of the project, the Consumer Needs Analysis and Clinician Needs Analysis, generated from stakeholder consultations and input from hundreds of health professionals and consumers, has identified that long wait lists for access to pain services and lack of targeted consumer and clinician resources specific for SCI pain are key issues.  Now in its third phase, the SCI and Chronic Pain Project is focusing on developing primary health and internet-based consumer resources, which will address identified gaps and focus on self-management techniques. 

If you would like more information about the project or if you would like to be involved in testing the resources, contact the project officer on Ph. 0428 634 874 or via email Lyndall.Katte@aci.health.nsw.gov.au 

Monday, 23 December 2013

 

Report: International Perspectives on Spinal Cord Injury

Spinal Cord Injuries Australia has been recognised as a leading provider of valuable services in a recent report published by the World Health Organisation (WHO). The report entitled ‘International Perspectives on Spinal Cord Injury’ summarises information about spinal cord injury and the practices of various organisations from around the world. We are proud to be acknowledged in this report as it shows our programs are recognised on a global level for making a difference to the lives of people with spinal cord injury. The report is available from the WHO website and can also be borrowed in hard copy from the SCIA SCI Resources Library.

Thursday, 12 December 2013

 

Free Workshops on person centred approaches

My Choice Matters is offering free workshops on person centred approaches, the National Disability Insurance Scheme, self-managed funding and individualised supports for people with disability. The workshops provide a valuable opportunity for people with disability, to think about how they can exercise choice and control over the supports and services they receive.  Participants will have the opportunity to hear from other people with disability, who are already operating within a person centred framework. For further information visit the website, email info@mychoicematters.org.au or call 1800 144 653.


Monday, 26 August 2013

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